After I Leave Hospital

Once you are home, a researcher from Monash University will contact you by phone, or video call, to:

  • ask some questions about your hospital stay and progress at home
  • discuss in greater detail the recovery goals that you identified in hospital.

This interview may take up to an hour. It can be completed over two calls if you prefer. Once this information has been collected you will be randomly assigned to receiving one of the two support programs aimed at helping you after stroke.

Randomisation

The study has been designed in a manner to ensure the researchers have no part in allocating participants to one of the two support programs. This process is called randomisation and is done by a computer. To find out more information about randomisation means, you may wish to read information at Australian Clinical Trials

Both discharge support programs assist you to achieve your recovery goals and will involve you receiving information via SMS or email during a period of 12 weeks. The number of messages you receive may vary, depending on the group to which you are allocated.

Electronic messages

Once randomised, you can expect to receive your first message from ReCAPS within a few days. This will be sent by your preferred method (email or SMS). If you have chosen to receive messages as email and they do not come through, please check your spam/junk mailbox. If the messages are in your spam or junk mailbox, please move our message to your inbox and add ReCAPS as a contact.

If after 7 days you have not received our ‘Welcome message’, please contact the ReCAPS office on:

Phone: 03 8572 2655

Email: recaps.enquiries@monash.edu

You will continue to be sent messages over twelve weeks.

Some electronic messages have a hyperlink that begins with ‘bit.ly/’. Clicking on the highlighted word will send you to a website where you can find further information relating to that message.

You do not need to respond to our messages unless we ask you to.

You may reply “stop” to messages if you no longer want to receive them. In this instance, a researcher from Monash University will call you within 72 hours to confirm whether you wish to stop receiving certain messages, or withdraw from the study altogether.

Follow-up assessments

All participants will receive a telephone, or video-call if you prefer, follow-up by a Monash University researcher at two time points (around 3 months and 12 months) after hospital discharge to complete outcome assessments. During these assessments, you will be asked to complete several health and wellbeing questionnaires. The questionnaire pack will be posted out to you in preparation for these follow-up calls. Make any notes on them that may be helpful prompts in answering the questions to the best of your ability.

The follow-up assessment at 3 months may take up to 50 minutes to complete. If you would prefer to complete the questionnaires yourself before the call, they can be returned in a reply paid envelope which we provide or electronically, as an online survey if you prefer. A member of the research team will still need to call you to review your progress towards achieving your health and recovery goals. These questions are not included in the pack that was mailed out. In this case, the phone follow-up may take about 15 minutes to complete with the researcher.

Once the 3-month assessment is completed you will be invited to complete a survey regarding your satisfaction with being involved in the ReCAPS study. This survey can be posted out to you for returning in a postage-paid envelope. Alternatively, we can send you a link to complete this survey online. You may also be asked to participate in a face-to-face interview about your discharge and trial experience. It is your choice whether or not you participate in this interview.

The final follow-up assessment is around one year (12 months) after your hospital discharge. This assessment may take up to 20 minutes. In preparation for this assessment, we will post out two final health questionnaires and a diary to help track the healthcare services used leading up to this assessment.